cutest pumpkin in the patch

happy Friday y’all! we are gearing up for a fun, but wet, weekend with my brother-in-law and sister-in-law. i was hoping to hit a few fun fall spots, but looks like we will be playing everything by ear due to the weather.

first, i want to say thank you to everyone who read my last post and reached out to me with recommendations and advice on the special needs trust. we are going to figure out some time we can sit down with an expert and really understand what we need to do. now we just have to find that time….

this past week was a busy one, to say the least. Mike was away all week and weekend, so i had to find some things to keep us busy (read distracted) so we didn’t have time to miss him too much. we kicked it off with a trip to the pumpkin patch with my mom, while the rest of the men in the family celebrated my dad’s big 6-0. per usual, i was so excited to take Landon to the pumpkin patch, complete with farm animals, corn maze and hayride. needless to say, he was less than amused and only smiled when his snack cup went “shake shake shake” and he got to walk in the gravel on the way back to the car. typical. here’s a few pictures for proof

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unimpressed
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equally unimpressed, but snacks are life

we are still in the midst of molar teething, which has resulted in some very trying and tiring days for me. he’s getting better each day and dealing with the pain a little better too.

other things that happened this week – tours and interviews. i am happy to report we hired a part-time nanny and she starts next week! fingers crossed she’s everything we hoped for and Landon takes to her quickly. mama’s gotta work and get things done! weΒ  toured two different preschools (we have a third tour lined up for next week). it feels good to get some of these things checked off my list. i also interviewed one pediatrician and have a second one lined up for next week. truthfully, i loved this first pediatrician and would choose him without interviewing anyone else. BUT i want to make sure i am thorough.

i am feeling every bit of 29 weeks pregnant lately. i am currently writing this with a heating pad on my low back because i literally cannot move. probably because i have been going 100 mph and cleaned our entire house yesterday, but it feels good to know it’s done and clean! also, i am happy to report i passed my glucose test (WHOOP WHOOP!) so i can continue to have my bowl of ice cream every night πŸ™‚

it’s crazy that i go back to the OB every 2 weeks now. this means, we are close to the end. woah, woah, woah! slow down. we still don’t have a name, but we did add one more option to our list. we still don’t have anything cleaned out of the nursery, but i did order fun wallpaper for an accent wall (sorry, Mike). we still have no idea what we are doing. we are trying though. after a nice little push to spend time reading again, thanks to my beautiful and talented friend Ashley, i have picked back up with two books. one by Jen Jacob with DSDN and the other by a prominent self-help author who also has a son with Down syndrome. feeling like i can do this a little more than i was feeling yesterday.

still on my to-do list: pick a name, tour the hospital and NICU, pick a pediatrician, clean out the nursery, decorate the nursery, house projects.

NEW on my to-do list: connect with the local Down syndrome chapter, look into Gigi’s playhouse.

enjoy your weekend, friends! we will be spending it with all the Tia and Uncle snuggles for L, another Hawks game, and maybe a couple house projects. we should also carve L’s pumpkin too…. i’ll make sure this is top on the list.

 

the waiting weeks

over the next few posts, i will attempt to do my best to get you caught up to the current (almost 22 weeks) stage in my pregnancy. we left off at 14 weeks, so here we go with the following weeks. i call them the waiting weeks.

welcome to the waiting weeks. weeks 14-16 of my pregnancy. they were weeks spent literally in waiting. waiting for more answers to be confirmed by an amniocentesis that could not be performed until week 16 at the earliest.

like i mentioned in the last post, we decided to go through with the amnio to confirm the exact genetic make-up of our baby boy. and again, like i mentioned, the blood test is very accurate in detecting Down syndrome, but not terribly accurate in the sex chromosome detection. given the results of the blood work, we just wanted to be absolutely certain. we were NOT denying that our baby had Down syndrome, but very skeptical that he also had Klinefelters since it’s extremely rare to have both.

back to the waiting weeks. these weeks were interesting. we were both still grieving, but now had to turn our focus (as much as possible) on the immediate need to move cross country.

we had approximately three weeks left on our lease and logistically needed to get things moving as quickly as possible. the tough part, waiting to find out from our moving company when the movers would be able to load our house. fortunately, our move included the packing service, so we were only responsible for packing what we needed for potentially (up to) 90 days. also fortunately, we were planning to move in temporarily with my parents while we house hunted (more on our house hunt later! i promised this blog would be snippets of our life and not only about DS 24/7). these last two blessings made things a little less stressful, but don’t forget we still have our 15 month old to worry about with all the adjustments ahead. move-wise, things were moving (haha) along slowly, but surely. life-wise. that was a different story.

life-wise, we started sharing with our friends that we were moving and it was a mix of emotions. i was not sure how much more i could handle on the emotion front. we made the most incredible friends in Cali. some of the best of our lives. they were more than friends to us. truly, they were family. when you are cross-country from your families and living in a world that revolves around basketball, where holidays really don’t exist, you learn to rely on one another. us women bonded together while our men were on the road or working, literally, seven days a week for 9 months of the year. we became sister-wives of sorts – cooking dinner for each other, holding babies for each other so someone could shower or take the trash out, drinking and laughing together through the long road trips, and checking in on one another when the earthquakes struck (TWICE WHILE HOME ALONE!!!!!). these goodbyes were tough and they barely had enough time to sink in. i cried pretty much the entire flight to Atlanta…and this is honestly not an exaggeration. to our Cali family, i left a piece of my heart there with each of you ❀

down syndrome-wise, i was making connections. i reached out to two “friends of friends” who had walked this path in super awkward texts and emails. i will forever be grateful to both women for being so kind, open, welcoming, non-judgemental and encouraging. you helped me (and continue to) through my mess of emotions and lengthy list of questions. thank you for your patience and thank you for opening my eyes to this beautiful community. we may not have met in person, but i felt less alone in just a few conversations and emails. one of the best pieces of advice i was given at this time was to continue to connect with women and families in our situation.

i was then introduced to the Down Syndrome Diagnosis Network and their private Facebook group for women expecting babies with DS. this support group has been one of the biggest helps in this journey. it’s a safe place for all the questions, worry, ugly feelings, doubt, fears, etc. each of our journeys are different, but one in the same and everyone in that group only wants to help and encourage. it’s the opposite of everything bad you read about the internet and i love it. if you are going through the same journey and have not connected with these women on Facebook, i encourage you to click the link here or on my homepage and get connected. i promise it is worth it. i have spent a lot of my waiting weeks reading the posts in this group and connecting with these women who are all in the same boat. i learned, for me, connecting with the DS community started to get me hopeful and feel excited again about this pregnancy and baby. this was the first sign of my mental/emotional health gaining some strength again.

we finished up the waiting weeks with all our necessities packed away in 6 suitcases awaiting our flight to Atlanta. with only a few days left, we headed in to our appointment with the perinatologist at exactly 16 weeks + 1 day hoping to see a healthy baby and proceed with the amnio.

stay tuned for an update from that appointment and the waiting weeks 2.0 (hint hint)

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photo credit: someplace wild (aka our amazing photographer and 2017 maternity shoot location)