friendships – Down Home with the Irrs

getting real.

i don’t want this to be a long winded post, but it just might. there has been a lot going on over here as we are in final preparations for this baby (and the holidays) and things are starting to get real. real, real.

so far, little bug has passed 3 BPPs and 2 NSTs. i go friday for my NST this week – i am praying that he will be awake so the appointment can be somewhat quick. i just can’t be on that monitor for an hour anymore…NOT okay. seriously contemplating rolling into the OB office with ice cream and donuts to get him to do some flips for us while i am there. come on little man, please cooperate!

in all seriousness though, things are getting real. we are two weeks from Christmas and three weeks from meeting our baby (should everything stay the course). this blows my mind. to sum it all up, i am stressed. i am trying to get everything done in time and i am quickly realizing, that won’t happen. not only because there is not enough time, but also because my body is not having it. between the braxton hicks contractions, low back pain, and lightning crotch (sorry for the crudeness, but this is a real thing and what it is commonly known as), my body is trying to tell me to stop.

but how do you stop? how can you stop? most of the week i am a one woman show with a toddler who wants to play and be held. an almost 30 lb toddler that needs a bath every night, lifted and lowered into his crib for naps and bed, constant diaper changes, and up and down the stairs. aside from the physical stress of being this pregnant with a toddler, i still have to assemble the dresser and organize clothes in the nursery, finish Christmas shopping, wrap gifts, pack a hospital bag and about 100 other things i intended to do before the holidays. looks like 90% of this will have to wait. my body is just saying NOPE.

the physical stress is draining. the emotional stress is equally as draining. as we approach the final weeks, i am confronted with a lot of fears and unsettled feelings. some days feel like i am back at week 13 when we learned the news about our special little dude. some days i battle those ugly feelings and then i feel guilty for being back in that space. this baby doesn’t deserve that. i also struggle with the feelings of adding another baby to the mix. my time with Landon will be different and that makes me feel sad at times. Landon doesn’t deserve a distracted momma.

i am also facing the fear of this delivery – the actual physical delivery of this baby. my first labor was pretty awful. Landon was too big for my body and we didn’t know it. this lead to a number of complications and interventions including a vacuum assist, episiotomy, and shoulder dystocia. sparing you any more of the gory details, let’s just say it was traumatic for me, mike, and baby. at the end of the day, everything turned out okay, but it very easily could have been a much different outcome. i know we will have a better understanding of little bug’s size due to all the growth scans we have, but there is still an element of error and unknown. i don’t want to go through that again and i don’t want to put another baby at risk like that again. every night i pray for a safe delivery. we’ll decide in the coming weeks how we plan to go about delivery when we get a clearer picture of bug’s size.

to end on a more positive note, God is working His magic. i would not be able to get through this without the love and support of my husband. for him, i am eternally grateful. my little family is my everything and they get me through the toughest of days. and my friends – man, am i lucky. the constant check-ins and texts really mean the world to me. i don’t know what i did to deserve all of you, but thank you.

remember when i mentioned we took family photos that were disastrous? well, our photographer is SO talented, she captured some really beautiful gems (snack cup and all, because this is real life people)! not only is she talented, but she is also an incredible human being. God put Rachel in our life for a bigger purpose and He’s already showing us why. Please check her out if you are in the Atlanta area (and tell her I sent you)!

Photos: Perfectly Bliss Photography

still here

hi, let me introduce myself again. i am stefanie and we are still alive and here. i apologize for being a bit MIA these last 12 days to be exact, but it’s been a bit nuts.

we have had a crazy 12 days jam packed with an epic visit from Cali friends, rain, rain and more rain, sleepless nights (thank you teething), sickness, doctor appointments for both L and me, and one long freaking road trip for mike. can you tell i am a bit salty about the road trip?

here’s my attempt at trying to catch you up on all the craziness. the last couple weeks started with a terrible three days of literally no sleep for me. between third trimester insomnia, the constant middle of the night bathroom trips, and landon’s teething, i could not get any rest. my body breaks down every time this happens and i get sick immediately. so i got sick. perfect timing for a big weekend of UGA football with friends visiting from Cali for their first ever SEC football game. good news, 60% of the people on this trip were sick. bad news, 60% of us were sick. but we had the time of our lives and it made me miss my Cali family SO bad.

after such a fun weekend, i needed to attempt to heal my body. sleep was necessary but not happening. mike left for one of the longer road trips and landon is currently not sleeping great thanks to his molars…. naturally, i get him sick in the process and Atlanta decided this past week was the perfect week for nonstop rain and 40 degree temps. who can keep an 18 mo old, sick toddler entertained indoors for 3+ days straight? anyone? please message me your tips.

even though our bodies were broken down, we did get some things accomplished around here. landon had his 18 month appointment with the new pediatrician who will also see little bug. it was great getting to know the doc a little more before going in for our first visit with bug. i think he will be a great fit!

i also had my 32 week OB appointment. my final “calm” appointment before the storm. next set of appointments include biophysical profiles (BPP) and non-stress tests (NST) every week. that’s enough to send my anxiety through the roof! looks like the hospital bag will be packed just in case. all is still looking good and normal right now!

in more fun news, my mom and i made more progress on the nursery. the accent wall is 4/5 of the way completed and has become quite the joke. i have literally had to order a new roll of wallpaper after each “nap time” work session. 2 sessions later and still need another roll of wallpaper for LITERALLY 21 inches wide of space. OH and if it couldn’t get any worse, the actual paper is only 20.5 inches wide, leaving us with figuring out how to make this work for HALF AN INCH. face palm. but we love it and it’s been really fun to see it start to come together. we also hung the curtains, which appear black in the photos from the lighting, but they are actually a dark green. this is going to be an accent color we use for the dresser.

4/5 completed

better shot of the green

more pregnancy updates – i am pretty positive we have decided on a name for little bug. YAY! this upcoming week i have another fetal echo to check on bug’s heart condition and we will tour the hospital/NICU. with the holiday chaos literally around the corner, it will be nice to at least know where we go when the time comes to deliver.

after all the rain, we have had two really gorgeous days and was able to escape with my little dude. we might both have runny noses and yucky coughs, but he loves to be outdoors and needed to make sure he practiced his hoop skills before dada came home. ❤

my focus this week is family time and Christmas shopping. anyone have particular black friday deals you are excited about? i’ll also be looking for baby gear we need for bug. aka a different baby monitor, double stroller, nursery decor, etc. second time mommas, send me your recs! i am all about finding a good deal, but also would love to know what you have found to be practical.

30 going on 31…weeks

not my age. although, i am recently (ish) 30. i can’t believe it’s November. i can’t believe i am about to be 31 weeks pregnant. i can’t believe we are about to have another baby SO soon. between the holidays and many tasks left to get done around the house, we are going to blink and baby will be here.

in the last week or so, not a whole lot has happened pregnancy wise. i had two appointments, one with my regular OB and one with my perinatologist. i learned a lot of things from these two appointments – basically for the duration of my pregnancy, i will live at the doctor’s office. ugh.

there is a much greater risk of stillbirths with babies that have chromosomal abnormalities and they want to make sure they catch any signs of distress ASAP. so starting at 34 weeks, i will go to the OB once a week for non-stress tests and the perinatologist once a week for biophysical profiles. that’s two appointments a week until i deliver. at any point in time, they could be telling me i need to go in and have this baby. looks like i have to add packing my hospital bag to my list of to-dos in the coming weeks!

other things related to little bug and momming life – our part-time nanny started last week and it has been life changing. the first day went great! i was able to focus on things i needed to do around the house, get myself dressed without having to chase a toddler around while brushing my teeth and even got some work done (gasp!). the second day, Landon realized i wasn’t home and was overly tired which made for a tearful morning. i am hoping this phase will pass as he gets to know her more and by the time little bug is here, he’ll be excited to play with Ms. Mallory. we also picked a pediatrician and it feels great to have that sorted out. i hope my gut is right with this choice and we come to love him as the medical professional protecting our children.

life updates – our first halloween in the new house was a semi-success. i say “semi” because Landon was in a sour mood and was not at all interested in going house to house (i know he’s still young). instead, he just wanted to wander the street and stare at all the big kids in costumes. we also ran out of candy by 7:30 PM, soooooooooo now we know! our neighborhood closes off the street in front of our house so kids can roam safely. it turns into quite the crowd from neighboring streets and two costco size bags of candy just wasn’t going to cut it.

life lessons i have learned this week – i am not alone in my thoughts and feelings. the support from each of you has been incredible and i find comfort in knowing that we are going through a lot of this together. whether related to a baby/child or something totally different, there is a common thread between the struggles. i also learned that while your child is getting their molars, ALWAYS give Motrin at night even when you think they are doing better. the TWO nights i didn’t give L his Motrin, resulted in a 4 AM wake-up (the night before Halloween, so probably why he was cranky) and 3 AM wake-up just a couple nights ago. i am exhausted and definitely coming down with something from the lack of sleep. my goal, more Motrin and take naps 🙂

PS my friends from Cali are coming to visit this weekend to go to their first ever SEC football game. i couldn’t be more excited to visit with them, but also get back up to Athens to cheer on my Bulldogs!

should it matter

this question has been weighing on me lately. it’s very simple, should it matter? let me explain myself a bit first.

as i have become more visibly pregnant, i have received a lot of well wishes and congratulations from perfect strangers, new neighbors, and women associated with the team that i am just starting to meet. and while i genuinely appreciate the “congratulations” versus the “i’m sorry” i once received, i struggle with whether or not i ~~need to~~ should share with them that our little guy will be different. this is usually how the interactions go:

person: congratulations! when are you due?

me: thank you! in January.

person: wow, you must be excited! do you know what you are having?

me: yes, we are very excited. another boy!

person: aw, that’s wonderful. they are going to be the best of friends (looking at Landon who is usually smiling or trying to destroy something near by)!

me: yes, that is what we hope! two partners in crime.

so here’s my struggle. it’s not with the perfect stranger. it’s with the people that i will see and continue to see over these coming months. it’s with the people who don’t know about this blog or my instagram or know me on a more personal level.

once little bug is born, are we (or, perhaps, just me) going to become “gossip?” are people going to talk about us and discuss whether or not they think we knew before he was born? and then i struggle again because, truthfully, why do i care? i usually don’t. but for some reason, something deep down, bothers me about becoming “talk” that probably won’t have the best of intentions behind the conversation. it bothers me that people will then potentially feel sorry for us and our life.

i choose not to tell people in that initial interaction because it doesn’t matter. i refuse to let little bug’s life be dictated by his diagnosis. he is already so much more than that. just like any other pregnancy and baby, i want him to be celebrated for the blessing that he is. so far, these interactions are too brief and in inappropriate settings to share something so personal. BUT i still struggle with whether or not i should.

does it matter? should it matter?

the waiting weeks 2.0: weeks 16-18

weeks 16 to 18 were filled with more waiting, but more “life.” here’s a look back at those weeks while we moved, prepared for an amniocentesis, and house hunted!

week 16: on july 27, we headed to our perinatologist in Oakland hoping to be able to have the amniocentesis done this day. i was freshly 16 weeks pregnant and just barely into the window of time where they can perform an amniocentesis. basically, they want the amniotic sac walls to be fused before they perform an amnio. this typically happens as early as 16 weeks, but is not the case for everyone. surprise, surprise, this was not the case for me.

the first half of the appointment consists of the ultrasound where the sonographer takes tons of pictures of baby to measure, track development, look for potential abnormalities or defects, and check if the amniotic wall has fused. then you meet with the doctor to go over the results. little bug (our nickname for this baby) was looking good and happy. per usual, he would not sit still for his pictures! then the doctor came in to talk through the results. things we learned this day: 1) i would not be getting the amnio unless we wanted to risk an unsuccessful procedure (we decided to return in 2 weeks) 2) there were a few areas of concern – there were signs of a hole in his heart, a potential brain defect, and a potential echogenic bowel 3) he was happy as a clam and gave us the thumbs up – like don’t worry mom and dad, i’m going to be okay 🙂 meet little bug ❤

it seemed like we were getting more and more bad news at every appointment. we had to keep in mind, however, that all of these potential health concerns were all considered normal for a baby with down syndrome.

week 16 was also filled with some fun things – house hunting! well, house hunting from afar. we looked at listings online from our agent and compiled a list of homes we wanted to see the following week when we arrived in Atlanta!

week 17: this week was a blur of life things. i think we toured almost 20 potential homes, striking out with them all. then we had a friend’s wedding in the North Carolina mountains. it was a much needed break from “life.” a weekend away baby-free (thanks to my father-in-law for keeping Landon), where we could reconnect with our east coast friends, relax, and semi-forget all of the stresses in our life.

we had a rude awakening back to reality after the weekend. Mike flew back out to California to handle the movers and returning the keys to our place. he flew back late Wednesday night to be at work bright and early Thursday. then i flew back to Cali on Thursday afternoon for my amnio procedure the following day. woof. this was a week!

week 18: week 18 started with me flying back to California for my amnio. due to insurance reasons, i had to come back to Cali. truthfully, i wasn’t too disappointed! we planned a girls weekend with my friends out there and basically had a weekend-long sleepover! besides the actual procedure part, it was a really fun weekend 🙂

the amnio. man, was i scared. there was the pain part that scared me… no pain medication or numbing creams to help with a needle going through my belly. then there was the risk to our baby that scared me. we already knew our baby had down syndrome (even though all the tests were not a true diagnosis), so was it worth the potential risk to baby just to find out the answer to the Klinefelters? i wanted Mike with me, but it just wasn’t possible.

one of my best friends stepped in for Mike and took me to the appointment and was my nurse for the rest of the day. the ultrasound showed the amniotic walls were fused and the procedure could take place. i think the entire procedure took all of one minute. it was definitely uncomfortable and not something i would like to do again. we had to wait two weeks for the results.

the rest of the day was spent relaxing and binge watching Bachelor in Paradise.

as with all things, everything seems to pile on at one time. we submitted an offer on a house the same day as my procedure (i did not see said house in person, but loved it from the pictures and trusted Mike to make the ultimate decision after he saw it) and went under contract the next day. life was definitely not slowing down for us anytime soon…

the waiting weeks

over the next few posts, i will attempt to do my best to get you caught up to the current (almost 22 weeks) stage in my pregnancy. we left off at 14 weeks, so here we go with the following weeks. i call them the waiting weeks.

welcome to the waiting weeks. weeks 14-16 of my pregnancy. they were weeks spent literally in waiting. waiting for more answers to be confirmed by an amniocentesis that could not be performed until week 16 at the earliest.

like i mentioned in the last post, we decided to go through with the amnio to confirm the exact genetic make-up of our baby boy. and again, like i mentioned, the blood test is very accurate in detecting Down syndrome, but not terribly accurate in the sex chromosome detection. given the results of the blood work, we just wanted to be absolutely certain. we were NOT denying that our baby had Down syndrome, but very skeptical that he also had Klinefelters since it’s extremely rare to have both.

back to the waiting weeks. these weeks were interesting. we were both still grieving, but now had to turn our focus (as much as possible) on the immediate need to move cross country.

we had approximately three weeks left on our lease and logistically needed to get things moving as quickly as possible. the tough part, waiting to find out from our moving company when the movers would be able to load our house. fortunately, our move included the packing service, so we were only responsible for packing what we needed for potentially (up to) 90 days. also fortunately, we were planning to move in temporarily with my parents while we house hunted (more on our house hunt later! i promised this blog would be snippets of our life and not only about DS 24/7). these last two blessings made things a little less stressful, but don’t forget we still have our 15 month old to worry about with all the adjustments ahead. move-wise, things were moving (haha) along slowly, but surely. life-wise. that was a different story.

life-wise, we started sharing with our friends that we were moving and it was a mix of emotions. i was not sure how much more i could handle on the emotion front. we made the most incredible friends in Cali. some of the best of our lives. they were more than friends to us. truly, they were family. when you are cross-country from your families and living in a world that revolves around basketball, where holidays really don’t exist, you learn to rely on one another. us women bonded together while our men were on the road or working, literally, seven days a week for 9 months of the year. we became sister-wives of sorts – cooking dinner for each other, holding babies for each other so someone could shower or take the trash out, drinking and laughing together through the long road trips, and checking in on one another when the earthquakes struck (TWICE WHILE HOME ALONE!!!!!). these goodbyes were tough and they barely had enough time to sink in. i cried pretty much the entire flight to Atlanta…and this is honestly not an exaggeration. to our Cali family, i left a piece of my heart there with each of you ❤

down syndrome-wise, i was making connections. i reached out to two “friends of friends” who had walked this path in super awkward texts and emails. i will forever be grateful to both women for being so kind, open, welcoming, non-judgemental and encouraging. you helped me (and continue to) through my mess of emotions and lengthy list of questions. thank you for your patience and thank you for opening my eyes to this beautiful community. we may not have met in person, but i felt less alone in just a few conversations and emails. one of the best pieces of advice i was given at this time was to continue to connect with women and families in our situation.

i was then introduced to the Down Syndrome Diagnosis Network and their private Facebook group for women expecting babies with DS. this support group has been one of the biggest helps in this journey. it’s a safe place for all the questions, worry, ugly feelings, doubt, fears, etc. each of our journeys are different, but one in the same and everyone in that group only wants to help and encourage. it’s the opposite of everything bad you read about the internet and i love it. if you are going through the same journey and have not connected with these women on Facebook, i encourage you to click the link here or on my homepage and get connected. i promise it is worth it. i have spent a lot of my waiting weeks reading the posts in this group and connecting with these women who are all in the same boat. i learned, for me, connecting with the DS community started to get me hopeful and feel excited again about this pregnancy and baby. this was the first sign of my mental/emotional health gaining some strength again.

we finished up the waiting weeks with all our necessities packed away in 6 suitcases awaiting our flight to Atlanta. with only a few days left, we headed in to our appointment with the perinatologist at exactly 16 weeks + 1 day hoping to see a healthy baby and proceed with the amnio.

stay tuned for an update from that appointment and the waiting weeks 2.0 (hint hint)